Layne's New Friends!!

Today we went and got Layne his birthday present even though his birthday isn't until next week. We got him 2 cute little parakeets!!! The are still a little nervous about there new environment but I'm sure they will be chirping all day in no time!! Here are the new little friends!

And to update you on Layne: He has not vomited in almost a month!!! Because of that and finishing all his baby food meals he is up to 18lbs 6.5ozs!!!!! I am so excited!!! I hope he continues to do well in this area!!!! Thanks everyone for checking in!!

Special Tomato Chair

Layne got his new Special Tomato multi-positioning system in on Thursday. It's really neat because it comes with a mobile base to put it on and a tray to put toys on. It can also be taken out in the car and also be used as a seat for him somewhere like a restaurant!! He will only sit in it for a short time but we will keep working on it and hopefully he will sit in it long enough for me to do something!! Here he is in his new chair!

I also wanted to update on the eating! He is still eating entire meals and usually not getting a drop on him! He seems to really enjoy it! I am thrilled that he likes eating, maybe one day he won't need his tube anymore!!

And I thought this was funny-I yawned this morning and Layne yawned after me! I didn't think yawns would be contagious for him because he can't see well, so I thought it was cool!

Layne ate an entire meal!!

Tomorrow will be two weeks without vomiting-knock on wood-if we make it until then!! I'm pretty sure he won't vomit before tomorrow though!!!

Another bit of good news, he is still doing well with eating and even finished an entire meal today!!!! All this combined has helped him continue to gain weight and he is now 17lbs 11.5ozs! Maybe he really will make it to 18lbs before he turns 2!!!

Doing Good!

Layne has been doing pretty good the past week! He hasn't vomited in a week(knock on wood-he probably will now!). He is doing better with eating and he actually moves his mouth up and down a little!! He still hasn't finished an entire meal but he is eating more each day! Here is a video of him eating!

He now weighs 17lbs 8ozs! That's good, but my back is really suffering. It's like carrying around 17 1/2lbs of dead weight all day. You can actually feel my back and you can tell the left side muscles are bigger than the right, because I hold him in my left arm. But I have to say it's well worth it for him to finally gain weight!!!

That's about all the news for now! We have still been swimming when we can, there have been a few rainy days lately but tonight should be good so we will swim today!!!

23 Months Old!

Today Layne is 23 months old! I cannot believe he will be 2 next month! I have mixed feelings about it but I won't get into that now. I will just share this cute pic of him!! Happy 23 months Layne!!!

6 Months Seizure Free and Meal Time!!!

Yesterday I tried a baby food meal again with Layne. He hadn't had one in about 5 months. I figured since he has been 6 MONTHS SEIZURE FREE he might do better with it.
He did pretty well, he only ate about 1/4 of it but really I don't blame him because I can't imagine it tasting very good! It was green beans and chicken mixed with butter. He actually gets more butter than anything it seems. He seemed to move the food around in his mouth better than he used to. I will keep giving him a meal once a day and see how it goes!

I cannot believe he has already been seizure free for 6 months!! I never expected him to become seizure free and stay that way for so long!! We are extremely lucky that he has improved so much, many children with this seizure disorder do not. I will leave you with this picture of the cat cuddling with Layne!!

Neurology Appointment

Today we went for Layne's Neurology appointment at Children's, and it's official....Layne has Cerebral Palsy. We, of course, already knew this but had not received an official diagnosis. We go back in October(for an appt and for the Keto Halloween party!!) and he will have MRI done in November. He will have the MRI when he should have been 2, basically so we can see the full extent of the brain damage. He will also have an EEG done sometime in February once he is completely weaned off the Phenobarb, to see how it looks then.

We also saw the dietitian today and talked about trying a baby food meal by mouth again. I was thinking that since overall he is improving since being seizure free, he may eat better, we'll see!! Also we talked about an "icing" recipe he can have on his birthday! I hope he likes it, it's chocolate flavor!!

Put Up Your Dukes!!

No those aren't boxing gloves Layne is wearing, instead they are his new thumb splints. He had pretty much out grown the ones he got a year ago. They hold his thumb out really well it seems. They don't seem to really bother him but he sure is happy when they come off!!!