Update

Layne got out of the hospital last Wednesday evening. After we got home he had a few very good days! But Sunday night he woke up at 11:30pm and did not go back to sleep. At 4:00 am he began another vomiting episode that required diastat. Luckily it stopped! Monday night he did not sleep well and woke up several times. Tuesday night he woke up several times but after getting some pain medicine he finally got some good rest (Layne has hip pain due to dislocated hips). This morning he started vomiting again. He vomited 3xs in about 15 minutes, so we went ahead and gave him diastat again and the vomiting stopped. He's definitely not his happy self and something is just "off" with him right now :( I think it has a lot to due with the weather, we have had on and off thunderstorms with high humidity and that always seems to bother him. Thanks for checking in!

Father's Day = Hospital Stay

Layne woke up on father's day starting a full blown vomiting episode. Diastat did not do the trick after 2 doses so I left work and we headed to the ER. Layne has been admitted and has had an awful time so far. He has basically been crying the entire time with the exception of the few hours he has managed to get some sleep. He's on round the clock phenergan, zofran, tylenol and ativan to try and help get him over this episode. I expect we will be here for a few more days.

Another CVS Episode

Layne had another vomiting episode tonight. He made it 11 days since the last one he had. He vomited 4-5 times within an hour or so and therefore required diastat to stop it. I'm not sure of the trigger this time, but it probably had to do with the higher humidity today. I'm just thankful the diastat stopped it and we did not have to go to the hospital! I still hate it though, that he has to go through it so many times.

I'm Back!

I've decided to start blogging again! It's probably really for myself, kind of like therapy, and also so I can record all the things that are going on with Layne.

It has been much too long since I last posted! I'm not even sure where to begin on what's been going on in Layne's life. The past two years he has really been struggling with cyclic vomiting syndrome. As of now he has an episode every 7-10 days and it is awful. However, since he started getting severe attacks in August of 2012 and was hospitalized many times, we have mostly been able to control each episode at home using Diastat.

Layne has had minimal seizures the past couple of years which is wonderful! His vision is also improving but will never be normal vision. He still loves riding in the car and his absolute favorite place to go is wal-mart, or really any shopping place, but our small town doesn't have much. He literally says "in the car" about 100 times a day, along with "dad", "dada", and "daddy", but no mommy :(

He has even lost two teeth (And we recently found out he has an extra tooth in the roof of his mouth)! He is still quite small, only weighing 29lbs, and he is now 41 inches.

And, just in case anyone doesn't know Layne's story, I'll do a quick recap now! Layne was born prematurely at 30 weeks 3 days after my water broke early at 28 weeks. He weighed only 2lbs 14ozs. He stayed in the hospital for 7 weeks before we could bring him home. Layne has many complications due to his premature birth, these include: Periventricular Leukomalacia (PVL-damage of the white matter around the ventricles of the brain), Cortical Visual Impairment (CVI-eyes are perfect, but not the nerves from the eyes to the brain, causes messed up signals from the eyes to brain), Failure to thrive (FTT-cannot eat enough on his own to survive), Cerebral Palsy, Hip Dysplasia, Cyclic Vomiting Syndrome (CVS-periods of vomiting followed by periods of no vomiting in cycles), Developmental Delay, Symptomatic Torsion Dystonia, Epilepsy, and I think that's it!

I hope you will all keep up with Layne and I hope I will be a frequent blogger!