Thursday, June 24, 2010

Neurology Appointment=Good News!

Monday Layne had an appt with his neurologist. We learned that his EEG, while still having some abnormal spikes in the back right and left parts of his brain, was improved! The background pattern was normal! You can tell the difference in wake and sleep as well as other "normal" things. This is very encouraging news! He also had his 2nd MRI this month and there has been no change since his previous one when he was 8 months old!

We are going to start the Ketogenic diet wean in 2 weeks! This is exciting but as you can imagine scary at the same time! We are increasing his Keppra before we start the wean because he was on a very tiny dose for his weight. I believe we are weaning at a rate of .25 per week...so to my understanding I think it will be something like 5 or 6 months to finish, not positive on that though. We are also starting to add more formula to his day feeds and subtracting from his night feeds, with the goal being to eventually not have an overnight feed! That will be so much easier!!


We also got Layne a referral to see the dentist at Children's. He is getting most of his teeth now so I figured it's about time. Gotta keep that beautiful smile healthy!!!


Layne has also recently learned to say "mama"!! We are so thrilled! I need to post the video! He is improving all around. He even let Megan(with ECI) hold him and play with him for his entire 30 minute session...he doesn't let others hold him ever!!!


Little sister Lexi is doing good! She is now 7 weeks old and weighs almost 10lbs! I cannot believe babies grow so fast! Layne was only 12lbs on his 1st birthday! Layne still seems to enjoy having her around, except when she is eating and I cannot hold them both, he cries then:(


Here is Layne just "chilling" in the pool! Haha he likes to lay back like that and get his head wet!!

Thursday, June 3, 2010

Summer


Well summer is here and that can only mean one thing...SWIMMING!! Yay! Layne is enjoying the pool again this year!


In other news he is doing well. He is still seizure free! He is still doing good eating his meals. He had an MRI of his brain today and we have an appointment with the neurologist on the 21st. He also has an appt on the 7th with the nephrologist.


He will soon be getting some wrist splints and also some AFOs.


He is trying hard to say mama! So I can only hope this means he is going to keep expanding his vocabulary!


He is enjoying having his little sister around, hopefully it will stay that way!