Snow Day!!

Layne in the snow for his very first time ever!!!

Tonsillitis

Poor little Layne has had tonsillitis since Thursday. He is finally starting to maybe feel better today. We have not gotten much sleep around here because he coughs so much it keeps him up. Hopefully he will be back to normal soon!!

Here is a picture of him enjoying his swing!

Stroll for Epilepsy

This year's stroll is April 9th, 2011 at the Dallas Zoo! Here is the link to Layne's team, Layne's Rockin' Walkers, if you want to join or donate!!

http://eftx.donordrive.com/index.cfm?fuseaction=donorDrive.team&eventID=520&teamID=5242

We had a lot of fun the first year we did the walk, and couldn't participate last year because I was way pregnant and on bed rest at the time. We are looking forward to it this year!!

Cyclic Vomiting Syndrome

Layne had a GI appointment yesterday. We explained to him the unusual pattern of vomiting that Layne has. He will vomit for 2 weeks sometimes and then be fine for 2 weeks to a month. It's the weirdest thing. So his doctor believes he has what is called cyclic vomiting syndrome. He has been prescribed Zofran to help when he has an episode. I'm really hoping this will help, because Layne is still a tiny 20lbs 7ozs, at 3 1/2 years old. We also have to squeeze in another feeding during the day, to try to "beef him up" as his doctor said, ha!

The past few appointments Layne has been to, he has had high blood pressure readings. Yesterday it was 133/83. I am concerned about this and so are the doctors. We will be seeing his nephrologist on Monday, so I'm going to ask him what to do about it.

Progress!

Layne has been making some good progress in a few areas lately! He used to want to be held about 95% of the day and now he is only held on average about 25% of the day. This is good for all of us! So with all that extra floor time, he has learned to roll from his back to stomach!! I never thought this would happen!! It's so amazing that he has accomplished this!

Also, used to it took great measures to get Layne to sleep. First there was standing and rocking. Then he got to where he could lay on his daddy's chest and listen to music. Then it wasn't music it was shaking a water bottle(funny, I know!). Now he is off of daddy's chest and laying next to him and falling asleep with just a hand on his chest, no music and no water bottle!! We are thinking of getting him into his own bed now!

Layne also used to HATE riding in the car, I mean screaming at the top of his lungs! Now he gets excited about riding in the car and this is a huge blessing on mommy and daddy's ears, haha!!

I just hope of this means more is to come!! I can't wait to see the amazing things he will continue to do!

I really need to blog more, so I'm going to work on that as much as I can!

Christmas Pics!!

Things You Will Find in My Diaper Bag That You Won't in Others..

In my diaper bag you will find all the normal things, diapers, wipes, extra clothes. But what you might not expect to find in others, you will find in mine.

These include:

A back-up Mic-key button, in the event Layne's gets pulled out.

An emergency catheter, in case his button comes out and we cannot get the other in fast enough, this would be needed to keep the hole open because it can close rather quickly. And believe it or not, this has been used twice.

Sterile water, to fill the button.

Syringes, these would have multiple uses.

Sterile lube, to help the emergency catheter, or spare Mic-key button go in easily.

Clamps, also could have multiple uses.

Tape, once again multiple uses.

Gauze.

Extension tubes.

I'm sure I'm leaving something out..but you get the idea.