How's Layne Doing Lately?

Layne has been doing pretty well lately! He is doing good in school and has managed to skip any illnesses so far! Even missing out on a couple that little sister Lexi has had! I hope I'm not speaking too soon, but it's something worth praise!

He is currently weighing 24lbs, so there could definitely be improvement there, and we are definitely working on it! He is 35 inches tall. Hopefully he will start gaining weight with the small formula changes we are making so that we do not have to resort to a G-J tube.

I'm not sure if anyone remembers, but Layne used to scream in the car, and I mean scream! Now he loves riding in the car and rarely ever cries!

He has recently been referred to physical medicine and rehabilitation at Children's so we are looking forward to that appointment in December to make sure everything is doing ok in that area. I hope nothing is too horribly wrong. There has been discussion of possible botox treatment for his tight leg muscles.

We are looking forward to Halloween, even though Layne can't eat candy, we enjoy dressing him up and this year he is going to be a pirate!!

Layne is sleeping pretty well and occasionally sleeps all night in his bed without waking! But most nights he wakes up and we have to put him back to sleep.

He is enjoying playing with a variety of toys, including his Ipad!

I guess that's about all I can think of for now, thanks for checking in on him!

A Special Needs First Day

When you have a special needs child, the first day of school is quite a bit different.

You pack your child's backpack with paper, pencils and crayons.
I pack Layne's with diapers, wipes, clothes and bags for vomiting.
You hope your child will make friends.
I hope Layne can make it there for 1.5 hours without getting too upset.
Your child might be scared, but you can explain to them what's going on.
I cannot explain to Layne that he's going to be ok.
You may worry that your child might get sick this school season.
I worry that if Layne gets sick, he may not recover.
You register your child for school.
I have to have an ARD meeting for everything involved with Layne.
You walk your child in by the hand.
I push Layne into school in a wheelchair.
Your child knows what school is, and is ready to learn.
I hope that Layne understands that I have not "left him".

There are many differences in our children, but it's a big day for everyone! I hope everybody had a great first day!!

Here is Layne on his first day! He did pretty good, but he did cry some of the time. Hopefully he can get used to the routine very soon!!

Catch Up Post!

 

Ok, so it has been entirely too long since I have blogged! Here is the lastest on Layne:

Layne is nearly 24lbs!! He is really growing and he is now 34 inches long!

About a month ago, a very nice family donated a hospital type bed to Layne. He isn't sleeping in it too good yet. Most nights he only sleeps in it until around midnight. But were working on it.

School is out for the summer and I think Layne is ok with that for now. He really loves school though.

A couple of weeks ago Layne had his sleep study and I just heard back today that he does not have sleep apnea and the EEG part of the test showed no epileptic activity!! That was excellent news! This is Layne during the test.

We have been swimming a few times so far this summer and Layne absolutely loves it!!

Here is a picture of Layne and Lexi playing in his bed.

Layne saying "night night dada"

Easter 2011

I hope everyone had a great Easter weekend! We did!! Here are some pics!!

Stroll for Epilepsy and Sick Again

 Saturday was the Stroll for Epilepsy! Layne's Rockin' Walkers raised $530.00 for the Epilepsy Foundation!! Unfortunately Layne started to get sick at the stroll and ended up in the ER. You may remember that he did that the first time we participated in the stroll also. The doctors at the ER didn't find anything wrong so they sent us home with a diagnosis of dehydration (yeah because dehydration always causes a 103.6 temperature). So we went home with a sick little boy.

My instinct was that there was more to the story so we took him to his awesome pediatrician on Monday, only to find out he had strep throat AGAIN!  I really hope this is the last illness for a while. The little guy can't catch a break!!

Movie Star!

Saturday, Layne made his filming debut with the creator
of the Water Way Babies system! She is making a  documentary of babies and kids who use it and Layne  got to do it too!! He had a lot of fun swimming!